Annual Report 2018
The year 2018 marked two full years after Ebola devastated Sierra Leone and three other West African countries. We are happy to report, however, that the Society experienced no significant organizational or individual consequences from this dreadful disease.
Our primary objective of providing aid and comfort to sickle cell disease patients in and around Freetown and elsewhere continued to advance during 2018. As you may be aware, sickle cell has a genetic basis that, without informed reproductive choices, ensures its passage from parents to their offspring. The society, as part of our mandate, continued its efforts to provide proper counsel to patients, parents and the general public about this potential.
The number of clients attending our two clinics recovered from a low of 2447 in 2015, through 2640 in 2016, 3546 in 2017 and, in 2018, to 4038. New diagnoses of sickle cell disease (all genotypes) were 170, compared to 124, 208 and 229 in 2015, 2016 and 2017, respectively. And, as usual, new patients and their families received not only genetic counselling, but as well, general medical and health counselling about the nature of sickle cell disease.
Care packages included prophylaxis against malaria in the form of anti-malaria chemoprophylaxis and personal use of insecticide-treated bed nets to all clients; prophylaxis against bacterial infections; and appropriate blood-boosting vitamins, including folic acid and multivitamins. Where appropriate, these were issued on a regular monthly basis.
We continue to maintain an active schools information programme to ensure that school children affected by sickle cell attending selected schools received information about their disease to help them navigate the challenges presented by sickle cell. In this regarded, we completed a project with the UK’s De Montfort University, on inclusion of sickle cell children affected by sickle cell disease and how schools can ensure inclusion. The findings and recommendations are outlined in a report…”S Sierra Leonean Approach to ~Sickle Cell and School Inclusion—A Guide to School Policy” This report may be accessed at SCOOTER, Sickle Cell Open: Online Topics and Education Resources, www.sicklecellanaemia.org Subsequently, we published a Sickle Cell Song in the Krio language, entitled: “Sikul Sel”. The lyrics and the audio of the song can also be accessed at SCOOTER or at: http://sicklecellanaemia.org/wp-content/uploads/2018/09/SIKUL-SEL-Song-Sierra-Leone.wma
During 2018, the society also two pamphlets on sickle cell disease: Facts about Sickle Cell Disease and “Do you have a child with Sickle Cell Disease in your Class? – A Guide to Sickle Cell Disease for Teachers.
Dr & Mrs Sola Somolu
Dr and Dr. Mrs. Alpha Wurie and staff at RAMSY Laboratories,
Dr Len Gordon-Harris, Diagnostic Centre at Bathurst Street.
Dr Samuel Smith, Director, Malaria Control Programme
Mr & Mrs Nobisizwe Adekayode
Mr Raymond L Jarrett CEO, Sickle Cell Anemia Relief Foundation, USA
Mrs Bridget Ambroglio
Mrs Daphne Solomon
Mrs Margaret Jacobson
Ms Sylvia Gilpin-Jackson
Mr Mohamed Dagher, Khamtech Ltd
Dr. and Dr. Mrs. Alpha Wurie and staff at the RAMSY Medical Laboratories
Dr. DJO Robbin-Coker
Dr. Ishmael B Peters & Dr. Akim Gibril and staff at the Women’s Health Care
Dr. Len Gordon-Harris and staff at the Diagnostic Clinic,
Dr. Mrs. Lottie Whitfield
Mr. Oluniyi Robbin-Coker